WebOct 1, 2024 · The SMA REACH UK registry provides a robust system to collect information on patients to address clinical uncertainties originally identified by the national institute of clinical excellence (NICE). WebMar 28, 2024 · An international collaboration (SMA REACH UK, Italian SMA Network and PNCRN USA) undertook an iterative process to address discontinuity in the recorded performance of the Hammersmith Functional Motor Scale Expanded and developed a revised functional scale using Rasch analysis, traditional psychometric techniques and …
SMA REACH UK
WebSep 17, 2024 · New SMA REACH article publication on Revised Hammersmith Scale for spinal muscular atrophy: Inter and intra-rater reliability and agreement Webinar with Graeme O’Connor on a recent pilot … WebJan 30, 2024 · The SMA REACH UK Network is a national and international partnership between doctors and therapists involved in the care of children and adults with Spinal Muscular Atrophy. This network is supported by Biogen and SMA UK. Study Type. Study Type: Observational [Patient Registry] Study Design. Time Perspective: Cross-Sectional marsh baccharis
Revised Hammersmith Scale for spinal muscular atrophy: …
WebHereford. £22,220 a year. Full-time + 2. Additional job details. Driving Licence. Disability confident. Flexible working, Full-time, Job share, Part-time. Working in the busy Secure Media Cell (SMC) the Secure Media Accountant (SMA) is … WebA representative from Muscular Dystrophy UK (patient organisation) SMA-REACH Academic Lead; SMA-REACH (Global) Trial Manager; Two standing representatives from Biogen (company) and 1 substitute representative. It is anticipated that the committee will meet six-monthly. If patients and their families have questions for the MAOC these can be ... WebApr 8, 2024 · On Thursday 7th April, MDUK hosted the 2024 Neuromuscular Physiotherapy Conference. The hybrid event provided the first opportunity for in-person collaboration since 2024 and it was great to get so many experts together in the same room. MDUK welcomed over 80 neuromuscular physiotherapists from across the country, to come together to … marsh ave school